Can you imagine feeling hungry every single hour of every day for the rest of your life, even when you've just eaten a full meal?
That's reality for 8-year-old Chase Grey. He was diagnosed Prader Willi syndrome when he was just a few weeks old.
Prader Willi is a congenital disease that comes from a mutation of the 15th chromosome and only affects one in every 15,000 people.
Because Chase is always hungry, the food in the house has to be locked up. The fridge is tied down, and the pantry has a padlock.
Dr. Sharon Travers is one of Chase's doctors at Children's Hospital. She says most Prader Willi children are growth-hormone deficit.
They also have behavior issues such as extreme tempers, learning disabilities, scoliosis and the males will not be able to reproduce. The majority of adults with Prader Willi are obese, and as they get older, the urge for food grows.
So for now, all Chase's parents can do is closely watch what he eats and makes sure he gets a lot of exercise, and know that each and every day will be like a puzzle, trying to fit each piece with the next, in order for Chase's life to be as normal as possible.
Not only is Prader Willi Syndrome difficult physically and emotionally, it is also financially difficult. It costs the Grey family more than $30,000 a year to support the growth hormone therapy, physical therapy, doctors and so on.
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